Issue №1-89, 2019

Medical rehabilitation of children with cerebral palsy: application of the international classification of functioning, disability and health (children and youth version)

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1 Belova A.N., 1 Sheiko G.E., 1 Shaklunova N.V., 1 Israelyan Y.A.

1 Privolzhsky Research Medical University», Nizhny Novgorod, Russia


ABSTRACT

The international classification of functioning, disability and health (children and youth version) (ICF-CY) is currently used todescribe and measure the extent of children’s health problems. This classification makes it possible to unify the determinationof the individual profile of the child taking into account environmental and personal factors, to assess changes in healthdisorders in the process of rehabilitation. The ICF-CY is used for patients with cerebral palsy. The article presents the methodologyof the ICF-CY application, describes the problems that complicate the practical application of the classification, andpresents a clinical example of the ICF-CY use in the rehabilitation of children with cerebral palsy.


KEYWORDS: International classification of functioning, disability and health, cerebral palsy, medical rehabilitation.



References:

  1. Rosenbaum P., Paneth N., Leviton A., Goldstein M., Bax M., Damiano D., Dan B., Jacobsson B. A report: the definition and classification of cerebral palsy April 2006 // Dev Med Child Neurol Suppl. 2007; № 109: P. 8-14. doi: 10.1111/j.1469-8749.2007.tb12610.x
  2. Baranov A.A., Namazova-Baranova L.S., Kuzenkova L.M., Kurenkov A.L., Klochkova O.A., Mamed”yarov A.M., Karimova H.M., Bursagova B.I., Vishneva E.A. Clinical guidelines. Children with Cerebral palsy. 2016. 26 p. (in Russ.).
  3. Semyonova E.V., Klochkova E.V., Korshikova-Morozova A.E., Truhacheva A.V., Zablockis E.Y. Rehabilitation of children with cerebral palsy: review of modern approaches to help rehabilitation centers. M.: Lepta Kniga; 2018. 584 p. (in Russ.).
  4. International Classification of Functioning, Disability and Health, Children and Youth Version. Geneva: World Health Organization, 2007. Режим доступа: http://apps.who.int/iris/bitstream/handle/10665/43737/9789241547321_eng.pdf?sequence=1.
  5. International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 2001. Режим доступа: http://psychiatr.ru/ download/1313?view=name=CF_18.pdf
  6. Kazmin A.M., Perminova G.A., Chugunova A. Application of the International Classification of Functioning, Disability and Health, Children & Youth Version (a brief review of the literature). Klinicheskaya i special’naya psihologiya. 2014; 2: 103-118. (in Russ.).
  7. Rosenbaum P., Stewart D. The World Health Organization International Classification of Functioning, Disability, and Health: a model to guide clinical thinking, practice and research in the field of cerebral palsy // Semin Pediatr Neurol. 2004; Vol. 11, 1: 5-10.
  8. Schiariti V., Sauve K., Tatla S. Which Measure Should I Use?: Content Analysis Using the ICF Core Sets for Children and Youth with Cerebral Palsy // Paediatrics & Child Health. 2015; Vol. 20, 5: e41-e42. doi: 10.1093/pch/20.5.e41.
  9. Jeevanantham D. Application of the International Classification of Functioning, Disability and Health - Children and Youth in Children With Cerebral Palsy // Indian Pediatr. 2016; Vol. 53, 9: 805-810.
  10. Leonardi M., Martinuzzi A., Meucci P., Sala M., Russo E., Buffoni M., Raggi A. A population survey in Italy based on the ICF classification: recognizing persons with severe disability // Scientific World Journal. 2012; 2012: 189097. doi:10.1100/2012/189097.
  11. Rauch A., Cieza A., Stucki G. How to apply the International Classification of Functioning, Disability and Health (ICF) for rehabilitation management in clinical practice // Eur J Phys Rehabil Med. 2008; Vol 44. 3: 329-342.
  12. Vargus-Adams J.N, Martin, L.K. Domains of Importance for Parents, Medical Professionals, and Youth with Cerebral Palsy Considering Treatment Outcomes // Child Care Health Devel. 2010; Vol. 37: 276-81.
  13. World Health Organization. How to use the ICF. Режим доступа: http://www.who.int/classifications/drafticfpracticalmanual.pdf.
  14. Wright F.V., Rosenbaum P.L., Goldsmith C.H., Law M., Fehlings D.L. How do changes in body functions and structures, activity, and participation relate in children with cerebral palsy? // Dev Med Child Neurol. 2008; Vol. 50: 283-9.
  15. Shoshmin A.V., Ponomarenko G.N., Besstrashnova Y.K., Cherkashina I.V. The application of the International Classification of functioning, disability and health for the evaluation of the effectiveness of rehabilitation: methodology, practical experience, results. Voprosy kurortologii, fizioterapii i lechebnoj fizicheskoj kul’tury. 2016; Vol.93, 6: 12-20. doi: 10.17116/kurort2016612-20. (in Russ.).
  16. Adolfsson M., Malmqvist J., Pless M., Granlund M. Identifying child functioning from an ICF-CY perspective: everyday life situations explored in measures of participation // Disabil Rehabil.2011; Vol. 33, 13-14: 1230-1244. doi:10.3109/09638288.2010.526163.
  17. Rosenbaum P., Eliasson A.C., Hidecker M.J., Palisano R.J. Classification in Childhood Disability: Focusing on Function in the 21st Century // J Child Neurol. 2014; Vol. 29, 8: 1036-45.
  18. World Health Organization. ICF core sets: manual for clinical practice. Geneva: WHO; 2012.
  19. Simeonsson R.J., ICF-CY: A universal tool for documentation of disability // J Policy Prac Intel Disabil. 2009;Vol. 6, № 2: P. 70-72. doi: 10.1111/j.1741-1130.2009.00215.x.
  20. Weigl M., Cieza A., Andersen C., Kollerits B., Amann E., Stucki G. Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise // J Rehabil Med. 2004; (44 Suppl): 12-21. doi:10.1080/16501960410015443.
  21. Stucki G., Grimby G. Applying the ICF in medicine-Foreword // J Rehabil Med. 2004; Vol. 36: 5-6.
  22. Schiariti V., Selb M., Cieza A., O’Donnell M. International Classification of Functioning, Disability and Health Core Sets for children and youth with cerebral palsy: A consensus meeting // Dev Med Child Neurol. 2015; Vol. 57, 2: 149-58.
  23. Schiariti V., Masse С., Cieza A., Klassen A.F., Sauve K., Toward the development of the International Classification of Functioning Core Sets for children with cerebral palsy: a global expert survey // Journal of Child Neurology. 2014; Vol. 29, 5: 582-591 doi: 10.1177/0883073813475481.
  24. Ketelaar M., Vermeer A., Helders P.J.M. Functional motor abilities of children with cerebral palsy: a systematic literature review of assessment measures // Clin Rehabil. 1998; Vol. 12. 5: 369-80.
  25. Harvey A., Robin J., Morris M.E., Graham H.K., Baker R. Asystematic review of measures of activity limitation for children with cerebral palsy // Dev Med Child Neurol 2008; Vol. 50, 3: 190-8.
  26. Waters E., Davis E., Ronen G.M., Rosenbaum P., Livingston M., Saigal S. Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument // Dev Med Child Neurol. 2009; Vol.51, 8. 660-9.
  27. Carlon S., Shields N., Yong K., Gilmore R., Sakzewski L., Boyd R. A systematic review of the psychometric properties of quality of life measures for school aged children with cerebral palsy // BMC Pediatr 2010; Vol.81, №10: P.1-11. doi: 10.1186/1471-2431-10-81.
  28. Schiariti V., Klassen AF., Cieza A., Sauve K., O’Donnell M., Armstrong R., Masse L.C. Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): A systematic review // Eur J Paediatr Neurol. 2014; Vol. 18, : 1-12. doi: 10.1016/j.ejpn.2013.08.001.
  29. Russell D., Rosembaum P.L., Avery L., Lane M. The gross motor function measure. GMFM-88 and GMFM-66 (Users’ manual).London: Mac Keith Press; 2002. Clinics in Developmental Medicine No. 159 // Developmental Medicine and Child Neurology. 2003; Vol.45, 12: 847.
  30. Haley S.M., Coster, W.J., Ludlow, L.H., Haltiwanger, J.T., Andrellos, P.J. Pediatric Evaluation of Disability Inventory (PEDI). Development, Standardization and Administration Manual. Boston, PEDI Research Group, New England Medical Center Hospitals. 1992.
  31. Landgraf, J.M., Abetz, L., Ware, J. E. Child Health Questionnaire (CHQ): A user’s manual. Boston, MA: The Health Institute, New England Medical Center. 1996.
  32. Vargus-Adams J.N., Martin L.K. Measuring what matters in cerebral palsy: a breadth of important domains and outcome measures. Arch Phys Med Rehabil 2009; Vol. 90, 12: 2089-95. doi: 10.1016/j.apmr.2009.06.018.
  33. Gorton Iii G.E., Stout J.L., Bagley A.M., Bevans K., Novacheck T.F., Tucker C.A. Gillette functional assessment questionnaire 22-item skill set: factor and rasch analyses // Dev Med Child Neurol 2011; Vol. 53, 3: 250-5.
  34. Davis E., Waters E., Mackinnon A., Reddinough D., Graham H.K., Mehmet-Radji O., Boyd R. Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes // Dev Med Child Neurol 2006;Vol. 48, №4: 311-8. doi:10.1017/S0012162206000673Published.
  35. Waters E., Maher E., Salmon L., Reddihough D., Boyd R. Development of a condition-specific measure of quality of life or children with cerebral palsy: empirical thematic data reported by parents and children // Child Care Health Dev. 2005; Vol. 31, 2. 127-35.
  36. Law M., Baptiste S., Carswell A., McColl M.A., Polatajko H., Pollock N. Canadian occupational performance measure. 2nd ed.Toronto: The Canadian Association of Occupational Therapists (перевод Мальцева С.); 1994. Режим доступа: http://manuals.sdc-eu.info/library/5.pdf.
  37. Livingston M.H., Stewart D., Rosenbaum P.L., Russell D.J. Exploring issues of participation among adolescents with cerebral palsy: what’s important to them? // Phys Occup Ther Pediatr 2011; Vol. 31,3. 275-87.
  38. Ostensjo S., Oien I., Fallang B. Goal-oriented rehabilitation of preschoolers with cerebral palsya multi-case study of combined use of the canadian occupational performance measure (COPM) and the goal attainment scaling (GAS) // Dev Neurorehabil 2008; Vol. 11, 4: 252-9.
  39. Filyuk S.A., Kochubey A.V., The application of International Classification of Functioning, Disability and Health in prosthetic dentistry. Rossijskaya stomatologiya. 2011; Vol.4, 6: 11-16. (in Russ.).
  40. Mal’cev S.B. Assessment of daily activity, participation and quality of life. Textbook. 2010. 63 p. (in Russ.).
  41. Baranov A.A., Al’bickij V.Y., Vinyarskaya I.V. Study of quality of life in Pediatrics. M.: Soyuz pediatrov Rossii; 2010. 380 p. (in Russ.).
  42. Kuz’mina N.N., Nikishina I.P., Shajkov A.V., Ruperto N., Shelepina T.A., Salugina S.O. The russian version of the childhood health assessment questionnaires(chaq) and the child health questionnaires (CAQ). Nauchno-prakticheskaya revmatologiya. 2002; 1: 40-44. (in Russ.).



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